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Massachusetts General Law recognizes May 24th as Phenylketonuria Awareness Day. Accordingly, Governor Baker has issued a Proclamation for Phenylketonuria Awareness Day 2016.  The Proclamation reads as follows:

A Proclamation

Whereas Phenylketonuria is a rare inherited metabolic disorder in which the body is unable to utilize the essential amino acid, phenylalanine; and

Whereas Boston Children’s hospital reports that there are no gender differences in risk factors or severity of PKU and about 1 in 15,000 children are affected nationally; and

Whereas Phenylketonuria is caused by the deficiency of the liver produced enzyme phenylalanine hydroxylase; and

Whereas Without this enzyme, phenylalanine builds up in the blood and body tissues, which is toxic to the central nervous system; and

Whereas When left untreated,  individuals with Phenylketonuria who consume too much phenylalanine are at risk of severe neurological complications, including IQ loss, memory loss, concentration problems, mood disorders, and in some cases severe disabilities; and

Whereas Early detection is important, as damage done is irreversible. When treatment is begun early (within the first few weeks of life) affected children can expect normal development and a normal life span

Now, Therefore, I, Charles D. Baker, Governor of the Commonwealth of Massachusetts, do hereby proclaim May 24th, 2016, to be

Phenylketonuria  Awareness Day

And urge all the citizens of the Commonwealth to take cognizance of this event and participate fittingly in its observance.”

 Please share this post to promote awareness of Phenylketonuria.

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